We want to thank Bridget Colby for preparing this video from Hike for a Cure 2009 and for being willing to share her family's experience with histiocytosis:
We joined The Hike For A Cure in 2006. It is a one day hike to the top of Half Dome, Yosemite. It is a grueling one day, 18 mile roundtrip with a 4800 foot ascent to honor the children, adults and families affected by histiocytosis. It is meant to symbolize the hardships faced during diagnosis, treatment, living past treatment and loss of loved ones.
You see, many affected with HLH die before they are diagnosed. Much of the knowledge to treat our daughter came from other children who past away. There are no public funds for research as histio affects too few to garner attention from the public resources. It is through grass roots efforts such as the Hike For A Cure that all fund for research are derived.
Once a year we are blessed to share the wonders of Yosemite with families from across the country. In this one weekend we commiserate, mourn, laugh, cry, recharge, get engaged and connect with our family that is histio.
The Colby Family has participated in the hike for the past four years. It is during this weekend this year that we were privileged to see a portion of the Ken Burns film. For our family Yosemite is the one place in the world we feel everything is right.
Its beauty is the reminder of hope we carry all year, through many unanswered questions.
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