A great video about the search for a cure and the experiences of families and patients battling against histiocytic disorders.
As another histio parent wrote in his blog, "the opening line 'I think it's very difficult to be the parent of a child with a life threatening illness' just might win the understatement of the year award."
Histiocytosis affects 1 in 200,000 children born each year in theUnited States . Because this illness is so rare, there is little research into its cause and treatment. It is often referred to as an "orphan disease," striking too few people to generate government-supported research.
You can help in the fight against histiocytosis by taking a moment (actually 7 minutes) to watch this video and then sharing with family, friends and co-workers.
Post it on your blog or Facebook page, email it to friends and help spread the word!
As another histio parent wrote in his blog, "the opening line 'I think it's very difficult to be the parent of a child with a life threatening illness' just might win the understatement of the year award."
Histiocytosis affects 1 in 200,000 children born each year in the
You can help in the fight against histiocytosis by taking a moment (actually 7 minutes) to watch this video and then sharing with family, friends and co-workers.
Post it on your blog or Facebook page, email it to friends and help spread the word!
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